SEND Children and Young People Self-Advocacy Group (CYPSA)

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• SEND Children and Young People Self-Advocacy Group (CYPSA)

Overview

Overall outcome of this group will be to support improved health outcomes for children and young people along with parent carers across the South West.   

1. Develop co-production regionally within children and young through developing a regional forum to support co-production within the region.
2. Developing children and young people co-production within local systems. The regional forum will support improvements in co-production within the 15 regional SEND systems. 
3. Develop children and young people co-production with local systems. The regional forum to support the voice of children and young people in national representation. 
4. To support local self-advocacy groups within the South West to develop co-production within the SEND systems through offering the opportunity to receive some grant funding. 

Examples of topics discussed

Annual Health Checks 

Recruitment of health professionals 

Local parent carer forums-what are they and how can we work more closely with them? 

Designated clinical officer (DCO) who are they and what is their job role? 

Lead commissioner-who are there and what is their job role? 

Relationships with health-including DCO and commissioning leads 

CYP voice in local SEND board meetings 

Barriers to accessing health care 

Co-production in local areas-how can this be improved? 

Progress to date

• Somerset Council have the contract to run this project 
• Project worker and young person champion employed 
• Baseline data gathered from local self advocacy groups from across the region
• Question and answer session held for local SEND participation leaders
• Recruitment of CYP and meetings have begun

Further Information

Useful links

• Council for the Disabled – Making Ourselves Heard Network